How Do You Communicate?

Cause I use a special communication device called a Dynavox & when I don't have my Dynavox I communicate through eye signals or little vocal murmurs. My Dynavox is almost like an IPAD & I access it by tapping a little switch & it scans through buttons until I select the button that I want.Here's a photo of me with my Dynavox 👇👇👇

Does Anyone On Here Use A Robotic Walker? In Specific We Are Looking At Getting The Trexo.

Do You Enjoy Videos Of Hikes Or Nature Walks? Do You Have Any Favorites You’d Like To Share?

Clinical Trials

Can someone of this group tell me something about myostatin inhibitors for people with SMA?

What Exactly Is SMA? I Am 61. HAD AN L-5/S-1 Fusion When I Was 43..Right Now AmI Might Need To Get The Rest Of My Lubar Spine Fused.

Transfer To Shower Chair

Hi everyone. I have an urgent but somewhat embarrassing question to ask everyone For quite some time I have been desperately looking for attendant care. Currently my night attendant who has another client has been filling in for some time. My agency thinks they may have possibly found someone, but they are only willing to lift me with a hoyer lift. I have a hoyer lift, and while i have successfully used it to transfer from my wheelchair into bed, no one I have ever had out has figured out… read more

Has Anyone Tried Electrical Stimulation? (E Stim)

If you have I’m looking to know what settings you used on the device.

How Do You Decrease Your Anxiety? What Tips Would You Share?

Can Aspiration Be Fatal

How common or likely is it for people with SMA to die from aspirating?

Any Advice For Energy Levels In General?

What would you recommend?