How Do You Communicate?

Cause I use a special communication device called a Dynavox & when I don't have my Dynavox I communicate through eye signals or little vocal murmurs. My Dynavox is almost like an IPAD & I access it by tapping a little switch & it scans through buttons until I select the button that I want.Here's a photo of me with my Dynavox 👇👇👇

Transfer To Shower Chair

Hi everyone. I have an urgent but somewhat embarrassing question to ask everyone For quite some time I have been desperately looking for attendant care. Currently my night attendant who has another client has been filling in for some time. My agency thinks they may have possibly found someone, but they are only willing to lift me with a hoyer lift. I have a hoyer lift, and while i have successfully used it to transfer from my wheelchair into bed, no one I have ever had out has figured out… read more

Has Anyone Tried Electrical Stimulation? (E Stim)

If you have I’m looking to know what settings you used on the device.

Does Anyone On Here Use A Robotic Walker? In Specific We Are Looking At Getting The Trexo.

Any Advice For Energy Levels In General?

What would you recommend?

Clinical Trials

Can someone of this group tell me something about myostatin inhibitors for people with SMA?

What Exactly Is SMA? I Am 61. HAD AN L-5/S-1 Fusion When I Was 43..Right Now AmI Might Need To Get The Rest Of My Lubar Spine Fused.

I'm Looking For Commode Chair Recommendations For My 10 Yr Old Type 2 Daughter

We previously had a r82 Flamingo, but are looking for something with more padding under the bum as the Flamingo is not comfortable enough. I'd like something that can roll over a toilet, but also be used with a pot. Thx! :)

Tell Me Your Favorite Movie By Quoting A Line From It.

My favorite movie quote is, 'We are the music-makers, and we are the dreamers of dreams."

What Tools Do You Use To Manage SMA?