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Stay positive! Remember, one day at a time!!
65yo male smaiii
Inside and out!❤️
My son has been diagnosed with a genetic pathology of VRK1 non5q SMA. It appears to be very rare with little to no information about it.
He has advanced atrophy of his right calf muscle and the… read more
hi i am Esther Geertsma from the netherlands and i and my mother and grandfather we had al 3 SMA-LED i look for people of the same and call with you
Smaiii 65yo male here, Noone else in family thankfully. Have a great day
I have noticed a lot of people that I young even. When they are in their 70 or 80 I call them young people they most are wiling to help you out in the store. Or young people I alway say thank you.
I've tried many things but nothing close to working yet. It would be amazing to have the safe tech (along with a big enough market) to get products like these for golf carts and motorcycles for our… read more
Whoa! 80 years - that is fantastic. I'm 54 and recently diagnosed type 3B. I did genetic testing through my neurologist.
Does scoliosis cause death
So...I don't want to paint an overly rosy picture. The healing after my surgery took months. It wasn't a pleasant experience, the healing was very painful and I had complications that led to a… read more
There was an article last November saying Zolgensma could be helpful for adults. Will they be doing a clinical trial on that soon? I have not seen anything further on it.
Wow, this is the first I've read of this. Can anybody confirm?
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