Questions & Answers

I've come to the point in my life where after 22 years of being able to hold down a very dependable and fulfilling job is no longer possible. This is on many levels very difficult, especially mentally.

I am struggling with trying to figure out how to get approved for Social Security disability. It's hard enough just getting short-term disability approved through my company, it's amazing how little so-called experts understand about the condition and have trouble understanding why it's… read more

How do you handle telling someone that you can't take them to where they want to go on a date because the place they want to go is not really wheelchair accessible..even though the website says it is?

So, the lovely person I have been dating really wants me to take her out to a Halloween theme park for her birthday. Asside from the billion of complications of trying to arrange a ride there, pick her up, arrange for my attendant to put me to bed at night and the steep cost of tickets more than… read more

My doctor believes I have SMA Type 3. Recently, I have discovered I have tremors. I think I've always had them, but didn't pay attention to them, blowing them off due to being hungry. However, I've also noticed that I have them when I'm not hungry. I don't always have them and they are not violent, but are annoying at times. 😆
Is this one of the many symptoms of SMA Type 3?

E.g. alexa, smart bulbs, etc.

So, this is a bit of a funny question, but I noticed on an SMA news forum a common complaint was the fact that many individuals with SMA said they looked much younger than their age and presumably treated like a child despite being an adult. I felt like this most of my life and only now that I am...well...old...have I only begun to view this as a positive and not a negative. Frankly, I never really connected my SMA with looking younger but now am wondering how common is this? Is it more a… read more

Have you noticed any differences when taking them or missing a dose?