What's One Natural Remedy That's Helped In Managing Your SMA? | mySMAteam

Connect with others who understand.

sign up Log in
Resources
About mySMAteam
Powered By

Questions & Answers

Get practical advice and insights from people who understand

Don't see your question? Ask one here
Real members of mySMAteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
206 questions
What's One Natural Remedy That's Helped In Managing Your SMA?
A mySMAteam Member asked a question 💭
A mySMAteam Member

I keep my self busy with my dog. It help me in a lot way. We got outside he listen to me. When I tell him to stop. He will check on me.

posted September 13, 2023
Power Wheelchair Recommendations
A mySMAteam Member asked a question 💭

So...part of me knows this is a ridiculous question, but I am hoping that maybe there have been changes I am unaware of. It is that dreaded time when I have to begin to apply for a new wheelchair.

It use to be I would look forward to the process. Use to be every new model of wheelchair would be better, drive further, be faster, overall better. That has not been the case however the last twenty years. The wheelchair I own twenty years ago was in every way better than the one ten years ago… read more

A mySMAteam Member
posted August 19, 2023
Name The Biggest Physical Challenge For You?
A mySMAteam Member asked a question 💭
A mySMAteam Member

Where I live if a crater fell out of the sky and hit our hospital our town would not have lost a thing! It is a JOKE!!

posted April 11, 2022
I Am 68 And Have Spinal Muscular Atrophy. How Do You Live After You Lose Your Independence?
A mySMAteam Member asked a question 💭
A mySMAteam Member

Your independence is up to YOU! I'm 65 and I'm always going out. Such as concerts, sporting events, and dinners with family and friends. We all have choices. You're letting SMA define you. People with… read more

posted September 7, 2023
What’s Your Top Survival Tip For Managing SMA In The Summer Heat?
A mySMAteam Member asked a question 💭
A mySMAteam Member

I've tried many things but nothing close to working yet. It would be amazing to have the safe tech (along with a big enough market) to get products like these for golf carts and motorcycles for our… read more

posted September 12, 2023
Even Though You (or A Loved One) Suffer From SMA, Would You Change The Life You Have?
A mySMAteam Member asked a question 💭

No wrong answer I'm just curious how others perceive this situation we are all in.

A mySMAteam Member

The one and only thing that I would change would be the fact that it took my husband at such a young age(47) very quickly and unexpectedly. I would have been very adamant about the doctors approach… read more

posted January 18
What’s The One Thing That's Helped You Most With Fatigue?
A mySMAteam Member asked a question 💭
A mySMAteam Member

Watch what I eat a lot healthy food. In while I will have hamburgers with fries to say you are you funny person.

posted June 20, 2023
For Those That Take Treatment For Your SMA: What Has Been Your Most Noticeable Change, If Any?
A mySMAteam Member asked a question 💭

i.e Spinraza, Evrysdi, Zolgensma

A mySMAteam Member

Thats too bad. Spinraza has made a difference in my life. I realize everyone is different.

posted November 3, 2023
What's One Thing That Can Instantly Make Your Day Better?
A mySMAteam Member asked a question 💭
A mySMAteam Member

You ask what is one thing that can make your day better. First is waking up and believing in yourself! Staying positive and surrounding yourself around positive people and people who love you… read more

posted August 21, 2023
What Creative Life Hacks, Tips, Or Tricks Do You Have, Big Or Small, That Make Your Everyday Life Easier?
A mySMAteam Member asked a question 💭
A mySMAteam Member

So cool, @A mySMAteam Member! 😁

posted April 4, 2022
Continue with Facebook
Continue with Google
Lock Icon Your privacy is our priority. By continuing, you accept our Terms of use, and our Health Data and Privacy policies.
Already a Member? Log in