new study zolgensma may benefit adults with sma types 2 and 3 and spinal muscular atrophy | mySMAteam

Connect with others who understand.

sign up Log in
Quick Links
Q&A Treatments A-Z Help Center Community guidelines Crisis Accessibility
Resources
Community Diagnosis & Information Managing Your Condition Treating SMA News SMA Videos All Resources
About mySMAteam
What is mySMAteam Terms of use Privacy policy
Powered By
Real members of mySMAteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Top 10 Search Results for "new study zolgensma may benefit adults with sma types 2 and 3"

reset
Top 5 searches:
Gene Therapy
A mySMAteam Member asked a question πŸ’­

I was wondering is there anyone here that knows someone who or have had zolgensma gene therapy?

β€’
Be the first to like/hug
A mySMAteam Member

I believe every child is different. The child that I know of that received zolgensma is also receiving another treatment (Risdiplam) as well. She was a type 1 who is now able to lift her leg over her… read more

Anyone With Type 1 Sma Child Who Got Zolgensma?
A mySMAteam Member asked a question πŸ’­
β€’
Be the first to like/hug
A mySMAteam Member

Yes, at 8 months old. His legs started moving in 2 days. He can now swallow, stand independently, walk short distances, and started riding a bike with training wheels. My general answer is to reply… read more

Can Adult Be Treated With Zolgensma?
A mySMAteam Member asked a question πŸ’­
β€’
Be the first to like/hug
Zolgensma For Adults
A mySMAteam Member asked a question πŸ’­

There was an article last November saying Zolgensma could be helpful for adults. Will they be doing a clinical trial on that soon? I have not seen anything further on it.

β€’
View reactions
A mySMAteam Member

Wow, this is the first I've read of this. Can anybody confirm?

Treatment Kab Aayega Sma Type 3 Ka
A mySMAteam Member asked a question πŸ’­
β€’
Be the first to like/hug
Is There Any One With Type 1 And Get Zolgensma.
A mySMAteam Member asked a question πŸ’­
β€’
Be the first to like/hug
I Have SMA Type 3 And Have A Torn Rotator Cuff. I Am Wondering If Anyone Has Dealt With This Specific Injury While Also Having SMA?
A mySMAteam Member asked a question πŸ’­
β€’
View reactions
A mySMAteam Member

Working at it in PT now. Getting some relief πŸ™ŒπŸ». I was just curious if anyone had some quick fixes 🀣. Unfortunately I think this will just be a long term thing I’m dealing with.

Any Parents Of Kids Who Have Received The Zoolgensma Treatment?
A mySMAteam Member asked a question πŸ’­
β€’
Be the first to like/hug
Sir If Any Updates Regarding The Complete Cure Of SMA Please Kindly Mail To My Account. "Service To Man Is Service To God"
A mySMAteam Member asked a question πŸ’­
β€’
View reactions
What Gene Causes SMA?
A mySMAteam Member asked a question πŸ’­
β€’
Be the first to like/hug