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Real members of mySMAteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

How Do You Manage Your Energy Throughout The Day?

How Do You Manage Your Energy Throughout The Day?

posted June 20
A mySMAteam Member

I don't. There was a movie years ago set in a dystopian future. This guy with a disability lived in a world where most people were genetically modified to be perfect. One of the side stories was him swimming against his genetically modified brother who was physically perfect. They had a swimming competition to see who could swim out the farthest. The guy with the disability not only won, but saved his drowning brother. The brother later asked him how he did it...it should have been no contest. The disabled man said, when you swam out you held back so you could return home. When i swam, i gave all i had to give to swim out... i gave it my all and trusted i would find the energy to swim back because i had to. I give all i have until i have nothing more to give...then push myself more.

posted June 20 (edited)
A mySMAteam Member

As if SMA wasnt fun enough, I get to add Bi-polar type 2, Severe Depression, and moderate Anxiety; so I'm perpetually tired.
I used to take a nap every afternoon, found my energy lasts longer the days I dont. But the inevitable crash is always there. Playing XBOX is surprisingly effective at holding the energy level at its level.

posted June 20
A mySMAteam Member

I take naps when possible

posted June 20
A mySMAteam Member

I divide up the things I need to do in a day. I rest in between.

posted June 20

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