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Real members of mySMAteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

What Analogy Would You Use To Help Someone Understand What It’s Like To Live With SMA?

mySMAteam asked a question 💭
San Francisco, CA
June 13, 2022
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A mySMAteam Member

It’s like being weighed down all over your body by invisible weights. As the years go by, they get heavier. Depending on the type you have equals the amount of weight you experience. You can feel everything but aren’t able to move or breathe without assistance.

June 13, 2022
A mySMAteam Member

Have them sit in a chair. Tie their hands and feet to the chair and tell them to go about their day.

June 15, 2022
A mySMAteam Member

SMA can be like having a ball and chain attached to you. It pulls you back and slows you down prohibiting you from doing things, ordinary things.

June 15, 2022 (edited)
A mySMAteam Member

Yes,exactly!!

June 13, 2022

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