Connect with others living with spinal muscular atrophy
Real members of mySMAteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice.
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What Analogy Would You Use To Help Someone Understand What It’s Like To Live With SMA?
What Analogy Would You Use To Help Someone Understand What It’s Like To Live With SMA?
A mySMAteam Member said:
It’s like being weighed down all over your body by invisible weights. As the years go by, they get heavier. Depending on the type you have equals the amount of weight you experience. You can feel everything but aren’t able to move or breathe without assistance.
posted 19 days ago
A mySMAteam Member said:
Have them sit in a chair. Tie their hands and feet to the chair and tell them to go about their day.
posted 17 days ago
A mySMAteam Member said:
SMA can be like having a ball and chain attached to you. It pulls you back and slows you down prohibiting you from doing things, ordinary things.
edited, originally posted 17 days ago
