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What’s One Thing You Wish People Who Aren’t Living With SMA Could Understand?
Honestly,, I wish people would realize that y'all have problems with muscles and such NOT THAT YOU DON'T HAVE FEELINGS OR A BRAIN THAT WORKS. I wish doctors and nurses would see you the same as everyone else and realize that just because you may be confined to a wheelchair and don't walk at all,,it doesn't make it any easier to amputate the leg's
Why it takes me so long to accomplish simple tasks. Why I move so slow.
I Have Had 3 Falls In 5 Days. My Legs Collapse Without Warning And I Crash To The Ground. I Am Frightened. I Don’t Know What To Do.
I’ve Had Scoliosis With A Pelvic Tip As An Early Teenager, And Was Diagnosed With SMA 4 Only When I Complained Of Weakness In My 50s.
Even Though You (or A Loved One) Suffer From SMA, Would You Change The Life You Have?
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