tay sachs vs spinal muscular atrophy comparing late onset forms and spinal muscular atrophy | mySMAteam

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Top 10 Search Results for "tay sachs vs spinal muscular atrophy comparing late onset forms"

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When Does A Patient With Spinal Muscular Atrophy Need A Laryngeal Breathing Tube?
A mySMAteam Member asked a question 💭
How Common Is Respiratory Acidosis Among Those Who Have Spinal Muscular Atrophy?
A mySMAteam Member asked a question 💭
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A mySMAteam Member

So...i know respiratory difficulties of all sorts are common with SMA. I can't speak specifically about respiratory acidosis.

Does Anyone On Here Use A Robotic Walker? In Specific We Are Looking At Getting The Trexo.
A mySMAteam Member asked a question 💭
A mySMAteam Member

I have seen amazing results for kiddos with Neuro muscular diseases using the Trexo!

Earning Money While On Disability
A mySMAteam Member asked a question 💭

How do you earn money without loosing critical disability benefits and Medicare ? So, in many ways, I am very lucky. When I started needing attendant care, I did the math and there was no way I could earn enough money, keep working, and pay for attendant care. The programs in my state that cover attendant care very strictly require an individual have less than $2,000 in assets total (including such things as gold teeth, burial plots, etc) and not be employed. If not for my father's support… read more

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What Is Your Favourite Accessible Travel Destination!?
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A mySMAteam Member

Love all these answers!!!

How To Spend A Day?
A mySMAteam Member asked a question 💭

Hi guys , I am 22 years old.I live in the countryside of Malaysia.I'm here today to ask a small question. but my english level quite bad, hope you all who read this post can take some patient to understand my voice.

Since I didn't have a university, I only finished my second year of high school.I have graduated for almost four years,but I never know how my future will happen .To be honest, I always thought I was an ordinary person, because I went to an ordinary high school, and I only realized… read more

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A mySMAteam Member

My heart goes out to you. I find it hard to imagine being in your situation. Are there care facilities available for you?

Do You Have A Technic To Feel Beter About The Look Of Your Body With All The Deformation Of Scoliosis?
A mySMAteam Member asked a question 💭

This body shaming problem is for everyone i guess, not for people with sma only. But anyway I wanted to ask as a girl struggling with that feeling time to time

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A mySMAteam Member

Well Personally I don't much like wearing anything that Clings to My Body, because then My Crooked Body really shows. So I tend to buy what I like, but I may buy just a tad bit larger just so it's not… read more

My Day Has Been Good.
A mySMAteam Member asked a question 💭
A mySMAteam Member

Any day.

How Handle Dealing With Someone Dating Who Is Getting Very Serious...are Not Sure If Able Because Of Disability?
A mySMAteam Member asked a question 💭

Am having very conflicted feelings as I know I may never meet someone again who was interested in me in this way...but am not really sure can physically, emotionally and financially fullfill this person's visions for a future. I don't want to break up as care for this person...but don't think i could really fullfill her wishes.

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A mySMAteam Member

I've struggled with this my whole life and continue to do so...I subconsciously sabotage every close relationship for fear of not being able to provide what that person deserves. I never thought it… read more

Neurologist
A mySMAteam Member asked a question 💭

Pennsyvania peep what neurologist do you use and where are they im looking for a dr in pa so my insurance will be in network to pay?

A mySMAteam Member

there is a neuromuscular department at Upenn