obstacles and tips for sticking with spinal muscular atrophy sma therapies and spinal muscular atrophy | mySMAteam

Connect with others who understand.

sign up Log in
Quick Links
Q&A Treatments A-Z Help Center Community guidelines Crisis Accessibility
Resources
Community Diagnosis & Information Managing Your Condition Treating SMA News SMA Videos All Resources
About mySMAteam
What is mySMAteam Terms of use Privacy policy
Powered By
Real members of mySMAteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Top 10 Search Results for "obstacles and tips for sticking with spinal muscular atrophy sma therapies"

reset
Top 5 searches:
When Does A Patient With Spinal Muscular Atrophy Need A Laryngeal Breathing Tube?
A mySMAteam Member asked a question πŸ’­
β€’
Be the first to like/hug
How Common Is Respiratory Acidosis Among Those Who Have Spinal Muscular Atrophy?
A mySMAteam Member asked a question πŸ’­
β€’
View reactions
A mySMAteam Member

So...i know respiratory difficulties of all sorts are common with SMA. I can't speak specifically about respiratory acidosis.

Is Ridisplam Effective For SMA-LED1 Disease?
A mySMAteam Member asked a question πŸ’­
β€’
Be the first to like/hug
What Is SMA-LED? Read Article...
What Gene Causes SMA?
A mySMAteam Member asked a question πŸ’­
β€’
Be the first to like/hug
Treatment Kab Aayega Sma Type 3 Ka
A mySMAteam Member asked a question πŸ’­
β€’
Be the first to like/hug
Anyone With Type 1 Sma Child Who Got Zolgensma?
A mySMAteam Member asked a question πŸ’­
β€’
Be the first to like/hug
A mySMAteam Member

Yes, at 8 months old. His legs started moving in 2 days. He can now swallow, stand independently, walk short distances, and started riding a bike with training wheels. My general answer is to reply… read more

Sir If Any Updates Regarding The Complete Cure Of SMA Please Kindly Mail To My Account. "Service To Man Is Service To God"
A mySMAteam Member asked a question πŸ’­
β€’
View reactions
Which Is Better For Treating Sma Disease, Is Evrysdi Or Spinraza?
A mySMAteam Member asked a question πŸ’­

Which is better for treating sma disease, is Evrysdi or Spinraza?

β€’
View reactions
I Have SMA Type 3 And Have A Torn Rotator Cuff. I Am Wondering If Anyone Has Dealt With This Specific Injury While Also Having SMA?
A mySMAteam Member asked a question πŸ’­
β€’
View reactions
A mySMAteam Member

Working at it in PT now. Getting some relief πŸ™ŒπŸ». I was just curious if anyone had some quick fixes 🀣. Unfortunately I think this will just be a long term thing I’m dealing with.

SMA Diagnosis
A mySMAteam Member asked a question πŸ’­

So after the neurologist gave me the SMA diagnosis in Jan, my mom remembered that we were sent to a genetic specialist when I was 4(1984); and SMA wasnt discussed at all.
Just curious if that is a common occurrence, or was SMA just not as well know in 1984?

β€’
Be the first to like/hug
A mySMAteam Member

Wow!