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Top 6 Search Results for "spinal muscular atrophy diagnosis"

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When Does A Patient With Spinal Muscular Atrophy Need A Laryngeal Breathing Tube?
A mySMAteam Member asked a question 💭
How Common Is Respiratory Acidosis Among Those Who Have Spinal Muscular Atrophy?
A mySMAteam Member asked a question 💭
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A mySMAteam Member

So...i know respiratory difficulties of all sorts are common with SMA. I can't speak specifically about respiratory acidosis.

Does Anyone On Here Use A Robotic Walker? In Specific We Are Looking At Getting The Trexo.
A mySMAteam Member asked a question 💭
A mySMAteam Member

I have seen amazing results for kiddos with Neuro muscular diseases using the Trexo!

SMA Diagnosis
A mySMAteam Member asked a question 💭

So after the neurologist gave me the SMA diagnosis in Jan, my mom remembered that we were sent to a genetic specialist when I was 4(1984); and SMA wasnt discussed at all.
Just curious if that is a common occurrence, or was SMA just not as well know in 1984?

A mySMAteam Member

Wow!

What Exactly Is SMA? I Am 61. HAD AN L-5/S-1 Fusion When I Was 43..Right Now AmI Might Need To Get The Rest Of My Lubar Spine Fused.
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Are There Any Moms Who Had Been Diagnosed Before They Had Children?
A mySMAteam Member asked a question 💭
A mySMAteam Member

I have SMA3
I’m 36 and was diagnosed at age 5. I just had my first baby almost 5 months ago. It’s tough. So worth it but I’m struggling during the day with him due to lack of strength and covid… read more