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Top 10 Search Results for "spinal muscular atrophy an overview"

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When Does A Patient With Spinal Muscular Atrophy Need A Laryngeal Breathing Tube?
A mySMAteam Member asked a question 💭
How Common Is Respiratory Acidosis Among Those Who Have Spinal Muscular Atrophy?
A mySMAteam Member asked a question 💭
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A mySMAteam Member

So...i know respiratory difficulties of all sorts are common with SMA. I can't speak specifically about respiratory acidosis.

Does Anyone On Here Use A Robotic Walker? In Specific We Are Looking At Getting The Trexo.
A mySMAteam Member asked a question 💭
A mySMAteam Member

I have seen amazing results for kiddos with Neuro muscular diseases using the Trexo!

I'm A Life Partner Caregiver Team Member. Trying To Get An Intermittent LOA. Doctor For Tammy Refused To Sign Unless She Fired Her PCA. ??
A mySMAteam Member asked a question 💭
Earning Money While On Disability
A mySMAteam Member asked a question 💭

How do you earn money without loosing critical disability benefits and Medicare ? So, in many ways, I am very lucky. When I started needing attendant care, I did the math and there was no way I could earn enough money, keep working, and pay for attendant care. The programs in my state that cover attendant care very strictly require an individual have less than $2,000 in assets total (including such things as gold teeth, burial plots, etc) and not be employed. If not for my father's support… read more

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What Exactly Is SMA? I Am 61. HAD AN L-5/S-1 Fusion When I Was 43..Right Now AmI Might Need To Get The Rest Of My Lubar Spine Fused.
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How To Spend A Day?
A mySMAteam Member asked a question 💭

Hi guys , I am 22 years old.I live in the countryside of Malaysia.I'm here today to ask a small question. but my english level quite bad, hope you all who read this post can take some patient to understand my voice.

Since I didn't have a university, I only finished my second year of high school.I have graduated for almost four years,but I never know how my future will happen .To be honest, I always thought I was an ordinary person, because I went to an ordinary high school, and I only realized… read more

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A mySMAteam Member

My heart goes out to you. I find it hard to imagine being in your situation. Are there care facilities available for you?

Zolgensma For Adults
A mySMAteam Member asked a question 💭

There was an article last November saying Zolgensma could be helpful for adults. Will they be doing a clinical trial on that soon? I have not seen anything further on it.

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A mySMAteam Member

Wow, this is the first I've read of this. Can anybody confirm?

Scoliosis
A mySMAteam Member asked a question 💭

Does scoliosis cause death

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A mySMAteam Member

So...I don't want to paint an overly rosy picture. The healing after my surgery took months. It wasn't a pleasant experience, the healing was very painful and I had complications that led to a… read more

Sexual Relief
A mySMAteam Member asked a question 💭

For those of you that are single...What do you do to get sexual relief? I know it's a bit of a personal question, but as I get weaker and lose the use of my hands, I'm struggling to get this taken care

A mySMAteam Member

This is a very real issue