Before 2016, there was no treatment to change the course of spinal muscular atrophy. Now, three t...
Posted 09/21/2021
Cost often plays a role when it comes to deciding on medical treatments. Getting a clearer pictur...
Posted 09/16/2021
The University of Rochester Center for Health + Technology is seeking caregivers of children with...
Posted 09/15/2021
“You look so good.” This statement may typically be thought of as a compliment, but in Jan Grue’s...
Posted 09/14/2021
I’m one of the few people in New Jersey to make it through high school and college with spinal mu...
Posted 09/09/2021
Eighty-five percent of infants born in the United States are now screened for spinal muscular atr...
Posted 09/07/2021
Daily doses of risdiplam may provide benefits for children with type 1 spinal muscular atrophy af...
Posted 09/02/2021
Peacock’s “Born for Business” docuseries is a step in the right direction insofar as presenting d...
Posted 09/01/2021
Whether their first day of college is around the corner or years away, people with spinal muscula...
Posted 08/31/2021
On July 29, The New England Journal of Medicine published the results of a study led by Dr. Basil...
Posted 08/27/2021
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