When Does A Patient With Spinal Muscular Atrophy Need A Laryngeal Breathing Tube?
How Common Is Respiratory Acidosis Among Those Who Have Spinal Muscular Atrophy?
So...i know respiratory difficulties of all sorts are common with SMA. I can't speak specifically about respiratory acidosis.
Has Anyone Had Any Sudden Jumps In Weakness?
Yes
Does Anyone On Here Use A Robotic Walker? In Specific We Are Looking At Getting The Trexo.
I have seen amazing results for kiddos with Neuro muscular diseases using the Trexo!
Is There Any Research On The Interaction Between Antidepressants And Either Evrysdi Or Spinraza?
Is There A Resource On Here To Share Experiences We Have With Different Products And Companies Who Sell Those Items?
Specifically a company who has, what I believe to be, terrible customer service, misleading company information and demanding sales of their accessories and goods exclusively or void their warranty?
How Can A Person Living With SMA Reduce The Recurrence Of Bronchial Infections E.g. Bronchitis, Pneumonia?
I have SMA and constantly suffer from bronchial infections due to post nasal drip and would really like to be able to manage it .
Can Anyone Give Greater Clarification Of Difference Between Smafk And Type 4 As Seem Interchangeable
Earning Money While On Disability
How do you earn money without loosing critical disability benefits and Medicare ? So, in many ways, I am very lucky. When I started needing attendant care, I did the math and there was no way I could earn enough money, keep working, and pay for attendant care. The programs in my state that cover attendant care very strictly require an individual have less than $2,000 in assets total (including such things as gold teeth, burial plots, etc) and not be employed. If not for my father's support⦠read more
Lack Of Oxygen In The Blood
I have been suffering from a lack of oxygen in the blood for two months, and I started using supplementary oxygen and I did not feel better. For those who went through this experience, what did you do during the lack of oxygen?