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Top 10 search results for "bone fractures and spinal muscular atrophy" in Q&A. To see all results and access other features, sign up for free.

When Does A Patient With Spinal Muscular Atrophy Need A Laryngeal Breathing Tube?

A mySMAteam Member asked a question 💭
Syria, VA

I Am 68 And Have Spinal Muscular Atrophy. How Do You Live After You Lose Your Independence?

A mySMAteam Member asked a question 💭
Templeton, MA
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A mySMAteam Member

Your independence is up to YOU! I'm 65 and I'm always going out. Such as concerts, sporting events, and dinners with family and friends. We all have choices. You're letting SMA define you. People with… read more

How Common Is Respiratory Acidosis Among Those Who Have Spinal Muscular Atrophy?

A mySMAteam Member asked a question 💭
Middletown, DE
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A mySMAteam Member

So...i know respiratory difficulties of all sorts are common with SMA. I can't speak specifically about respiratory acidosis.

Can SMA Include Bursitis Type Of Systems?

A mySMAteam Member asked a question 💭
West Jordan, UT
A mySMAteam Member

I can understand and share with your frustrations. I finally got some interest after receiving MRIs for my back. Sence having MRIs that revealed what appeared to be muscular atrophy I have been… read more

What Is The Life Expectancy For SMA Type 1?

A mySMAteam Member asked a question 💭
Stockton, CA
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A mySMAteam Member

My friend told me I am old than the planet Pluto. That was funny 🤣🤣🤣🤣🤣

I Have SMA Type 4 What Do I Tell My Doctors?

A mySMAteam Member asked a question 💭
Minot, ND
A mySMAteam Member

I always share my SMA diagnosis with my doctors. I usually have to explain what it is and how I’m affected by it. I believe it’s important for them to know everything about me in order to understand… read more

Shortness Of Breath

A mySMAteam Member asked a question 💭
Syria, VA

I have scoliosis, I am 21 years old. And I have scoliosis since childhood. This year, I started to feel short of breath when sitting and sometimes when lying on the back. Does scoliosis cause death in cases of spinal muscular atrophy? I only use PIBAB while I sleep.

A mySMAteam Member

Yes

I Would Like To Give Everybody’s A Hug. Remember We Are Great People’s With Love In Are HEART.

A mySMAteam Member asked a question 💭
WallaWalla,WA
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A mySMAteam Member

My son has been diagnosed with a genetic pathology of VRK1 non5q SMA. It appears to be very rare with little to no information about it.

He has advanced atrophy of his right calf muscle and the… read more

Type 3B And 4 Transition From Walking To Wheelchair

A mySMAteam Member asked a question 💭
Lincoln, NE

Can you share a bit about how the transition went for you over time? For example, I have difficulty standing from a seated position, but will I continue to be able to stand? I'm thinking about what sort of transfer I might be capable of long-term. Have you maintained arm strength? It not, what limitations have you encountered?

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A mySMAteam Member

That will be needed down the line but for now I'm able to walk short distances and manage self-care. I'm trying to get a sense for the sequence of events in the future.

What Are The Steps To Get A Diagnosis Of SMA? What Kind Of A Doctor Would I See? I Live In Wyoming And Specialties Are Rare.

A mySMAteam Subscriber asked a question 💭

I have been seeking help for back pain that got worse 2 years ago. I was recently told by a spinal surgeon that an MRI from two years ago showed that my spinal muscles have atrophied, another MRI recently confirmed it.

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SMA and 3 Other Neuromuscular Disorders That Affect Breathing Read Article...