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Treatment Kab Aayega Sma Type 3 Ka
My 2 Grandchildren Were Recently Identified With SMA. The 21yr Old Is Not Affected But The 18yr Old Is Getting Shots. I Am 73 Yrs Old.
My 2 Year Old Have SMA Type 2 And I Need To Know What The Best Diet Will Be For Her.She Don't Get Any Treatment .She Is Constantly Bloted
Can SMA Include Bursitis Type Of Systems?
I can understand and share with your frustrations. I finally got some interest after receiving MRIs for my back. Sence having MRIs that revealed what appeared to be muscular atrophy I have been⦠read more
Can A 23 Year Old Take The At Home Drug For SMA?
My son is almost 23 and an SMA Type 1. He has not wanted to do the spinraza but we are interested in the at home drug but not sure if people his age have taken it and what the outcomes have been. Any info would be much appreciated!
I've been on Spinraza since 2018. I feel it's the best for me. But you should ask the neurologist. Even seek out a second opinion. I'm sure this wasn't the answer you were looking for.
Name The One Thing You Find Most Challenging About SMA.
SMA is very frustrating as we become more and more limited. I miss walking.
How Can A Person Living With SMA Reduce The Recurrence Of Bronchial Infections E.g. Bronchitis, Pneumonia?
I have SMA and constantly suffer from bronchial infections due to post nasal drip and would really like to be able to manage it .
Bipap at night with settings you can handle and that will help you sleep through the night. Good suction, coughalator and vest treatments morning and night(this is all what we do for my son) and I⦠read more
I Have SMA Type 3 And Have A Torn Rotator Cuff. I Am Wondering If Anyone Has Dealt With This Specific Injury While Also Having SMA?
Working at it in PT now. Getting some relief ππ». I was just curious if anyone had some quick fixes π€£. Unfortunately I think this will just be a long term thing Iβm dealing with.
Looking Much Younger Than Age?
So, this is a bit of a funny question, but I noticed on an SMA news forum a common complaint was the fact that many individuals with SMA said they looked much younger than their age and presumably treated like a child despite being an adult. I felt like this most of my life and only now that I am...well...old...have I only begun to view this as a positive and not a negative. Frankly, I never really connected my SMA with looking younger but now am wondering how common is this? Is it more a⦠read more
I now add 10 years to my age when someone asks. 66yo male sma3
Tremors And SMA Type 3
My doctor believes I have SMA Type 3. Recently, I have discovered I have tremors. I think I've always had them, but didn't pay attention to them, blowing them off due to being hungry. However, I've also noticed that I have them when I'm not hungry. I don't always have them and they are not violent, but are annoying at times. π
Is this one of the many symptoms of SMA Type 3?
Zdravo, tudi jaz imam SMA tip3, pa nimam tresenja. Razen osteoporoze nimam posebnih problemov. Le pogumno.
Lpπ₯°
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