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SMA in the News

Winter Safety Tips for People With SMA

Over the years I have pieced together a few strategies for dealing with the cold season when livi...
Posted 12/28/2021

Winter Safety Tips for People With SMA

Over the years I have pieced together a few strategies for dealing with the cold season when livi...
Posted 12/28/2021
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The Challenges of Working With SMA

With a newly earned degree in speech pathology, I began my career as a school-based speech therap...
Posted 12/23/2021

The Challenges of Working With SMA

With a newly earned degree in speech pathology, I began my career as a school-based speech therap...
Posted 12/23/2021
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Participants Sought for Clinical Trial of SMA Muscle Therapy Apitegromab

Pharmaceutical company Scholar Rock is seeking participants for a clinical trial of apitegromab, ...
Posted 12/22/2021

Participants Sought for Clinical Trial of SMA Muscle Therapy Apitegromab

Pharmaceutical company Scholar Rock is seeking participants for a clinical trial of apitegromab, ...
Posted 12/22/2021
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Take the Pain and Make Art: An Interview With Will Stocker About His Film “Crippled”

Will Stocker is the producer and lead actor in “Crippled,” a film by Unicorn Propaganda. The crea...
Posted 12/21/2021

Take the Pain and Make Art: An Interview With Will Stocker About His Film “Crippled”

Will Stocker is the producer and lead actor in “Crippled,” a film by Unicorn Propaganda. The crea...
Posted 12/21/2021
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Comments and Jokes About SMA: How I Handle It

Sometimes the words people choose can make a difference in the overall impact of a conversation. ...
Posted 12/16/2021

Comments and Jokes About SMA: How I Handle It

Sometimes the words people choose can make a difference in the overall impact of a conversation. ...
Posted 12/16/2021
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More Than Half of People Who Start Spinraza for SMA Stop Within 2 Years, Study Finds

People who start taking Spinraza (nusinersen) to treat spinal muscular atrophy (SMA) may not alwa...
Posted 12/15/2021

More Than Half of People Who Start Spinraza for SMA Stop Within 2 Years, Study Finds

People who start taking Spinraza (nusinersen) to treat spinal muscular atrophy (SMA) may not alwa...
Posted 12/15/2021
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U.S. Airlines Are Mishandling More Wheelchairs as Air Travel Increases

Since the start of 2021, U.S. airlines have mishandled customers’ wheelchairs and mobility scoote...
Posted 12/14/2021

U.S. Airlines Are Mishandling More Wheelchairs as Air Travel Increases

Since the start of 2021, U.S. airlines have mishandled customers’ wheelchairs and mobility scoote...
Posted 12/14/2021
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Comedian With SMA Uses Stand-Up Comedy To Advocate for Disability Rights

Matt O’Nesti of Boardman, Ohio, has been performing stand-up comedy since he was in high school. ...
Posted 12/09/2021

Comedian With SMA Uses Stand-Up Comedy To Advocate for Disability Rights

Matt O’Nesti of Boardman, Ohio, has been performing stand-up comedy since he was in high school. ...
Posted 12/09/2021
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My Biggest Fear: Running Out of Time

Running out of time has been one of the most daunting and unparalleled fears in all of my existen...
Posted 12/08/2021

My Biggest Fear: Running Out of Time

Running out of time has been one of the most daunting and unparalleled fears in all of my existen...
Posted 12/08/2021
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The Challenges of Motherhood With SMA

I was in college when I got diagnosed with spinal muscular atrophy (SMA) type 3. Learning that I ...
Posted 12/07/2021

The Challenges of Motherhood With SMA

I was in college when I got diagnosed with spinal muscular atrophy (SMA) type 3. Learning that I ...
Posted 12/07/2021
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