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Real members of mySMAteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
207 questions
For Anyone That Uses A Power Wheelchair That Can Still Stand Up What Chair Do You Use Thats The Easiest To Stand From?
A mySMAteam Member asked a question đź’­
A mySMAteam Member

I use a scooter outside and a walker inside. I stand up from my kitchen stools and my lifting recliner.

posted 6 days ago
Hi, I Have Sma Type 3, From Few Days I Have Some Involuntar Facial And Finger Twitching, It Is Normal ? I Was Kinda Stressed Too
A mySMAteam Member asked a question đź’­
What Tips Would You Share To Help With Seasonal Allergies?
A mySMAteam Member asked a question đź’­
A mySMAteam Member

Jaz uporabljam Aerius 1x na dan, v ÄŤasu cvetenja pa 2x na dan in meni pomaga

posted May 6
Could You Share Any Dietary Changes And Tips That Have Helped With SMA?
A mySMAteam Member asked a question đź’­
A mySMAteam Member

I have lots of digestive issues, and quite honestly until I joined this SMA team, none of my doctors ever mentioned SMA contributing to digestive issues despite seeing many specialist and as a result… read more

posted March 25
What Gene Causes SMA?
A mySMAteam Member asked a question đź’­
Is SMA The Cause Of My Tiredness? It Is Hard Work Doing Anything And Walking. It Would Make Sense That That Is The Reason For My Tiredness.
A mySMAteam Member asked a question đź’­
A mySMAteam Member

Ok Fred I will make more effort thanks

posted March 18
How Do Beverages With Caffeine Affect Your SMA?
A mySMAteam Member asked a question đź’­
A mySMAteam Member

I honestly think I am immune from the effects of caffeine. I can literally fall asleep with a straw in my mouth after drinking half a mug of coffee ...but I started with coffee when I was very young… read more

posted March 21
I Was Just Denied By My Insurance My Request For A Hoyer Lift That We Are Going To Desperately Need Soon. What Should I Do?
A mySMAteam Member asked a question đź’­

On Wednesday, February 7, 2024 at 03:49:33 PM EST, Disability Coordinator wrote
Good afternoon
I wanted to let you know that I was able to speak with the provider we requested the hoyer through and they informed me that insurance decline the request and are unable to provide you the equipment. If you have any questions let me know. I will begin looking to see if there is a place to get one on loan.
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My Reply
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I don't understand how I can be denied ...the environmental assessment I had… read more

A mySMAteam Member

Hi Eric, really sorry to hear that about,and yes it is ridiculous as you say. If they don't get you through refusal, they seem to get you with pricing which here in Oz is ridiculous! Trust your appeal… read more

posted February 10
Treatment Kab Aayega Sma Type 3 Ka
A mySMAteam Member asked a question đź’­
What Lessons From Your SMA Experience Are You Applying In 2024?
A mySMAteam Member asked a question đź’­
A mySMAteam Member

I'm a caregiver. Trying not to be a caretaker. Living into the fact that the sole thing any of us can control is our response to the world around us.

posted April 27
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