understanding how sma gene therapy works and spinal muscular atrophy | mySMAteam
Sorry, that question could not be found.  

Connect with others who understand.

sign up Log in
Quick Links
Q&A Treatments A-Z Help Center Community guidelines Crisis Accessibility
Resources
Community Diagnosis & Information Managing Your Condition Treating SMA News SMA Videos All Resources
About mySMAteam
What is mySMAteam Terms of use Privacy policy
Powered By
Real members of mySMAteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Top 10 search results for "understanding how sma gene therapy works" in Q&A. To see all results and access other features, sign up for free.

Posts
Resources
Q&A
People
What Gene Causes SMA?
A mySMAteam Member asked a question 💭
•
Be the first to like/hug
How Can A Person Living With SMA Reduce The Recurrence Of Bronchial Infections E.g. Bronchitis, Pneumonia?
A mySMAteam Member asked a question 💭

I have SMA and constantly suffer from bronchial infections due to post nasal drip and would really like to be able to manage it .

•
Be the first to like/hug
Is Ridisplam Effective For SMA-LED1 Disease?
A mySMAteam Member asked a question 💭
•
Be the first to like/hug
What Is SMA-LED? Read Article...
Treatment Kab Aayega Sma Type 3 Ka
A mySMAteam Member asked a question 💭
•
Be the first to like/hug
Is The Genetic Version Of SMA The Only Way To Qualify For Membership Here?
A mySMAteam Member asked a question 💭

I suffer atrophy from a stroke for which the medical industry does nothing to help me. I am always in bed. I would like to have more support as I have almost none at all now. I do not wish to insult members who have SMA from genetic origin. I am feeling we have much in common and I sincerely need friends. I apologize for misunderstanding. I hope I can find acceptance here.

•
Be the first to like/hug
Sir If Any Updates Regarding The Complete Cure Of SMA Please Kindly Mail To My Account. "Service To Man Is Service To God"
A mySMAteam Member asked a question 💭
•
View reactions
Gene Therapy
A mySMAteam Member asked a question 💭

I was wondering is there anyone here that knows someone who or have had zolgensma gene therapy?

•
Be the first to like/hug
A mySMAteam Member

I believe every child is different. The child that I know of that received zolgensma is also receiving another treatment (Risdiplam) as well. She was a type 1 who is now able to lift her leg over her… read more

Anyone With Type 1 Sma Child Who Got Zolgensma?
A mySMAteam Member asked a question 💭
•
Be the first to like/hug
A mySMAteam Member

Yes, at 8 months old. His legs started moving in 2 days. He can now swallow, stand independently, walk short distances, and started riding a bike with training wheels. My general answer is to reply… read more

Are There Any Moms Who Had Been Diagnosed Before They Had Children?
A mySMAteam Member asked a question 💭
•
Be the first to like/hug
A mySMAteam Member

I have SMA3
I’m 36 and was diagnosed at age 5. I just had my first baby almost 5 months ago. It’s tough. So worth it but I’m struggling during the day with him due to lack of strength and covid… read more

Which Is Better For Treating Sma Disease, Is Evrysdi Or Spinraza?
A mySMAteam Member asked a question 💭

Which is better for treating sma disease, is Evrysdi or Spinraza?

•
View reactions