So...i know respiratory difficulties of all sorts are common with SMA. I can't speak specifically about respiratory acidosis.
I suffer atrophy from a stroke for which the medical industry does nothing to help me. I am always in bed. I would like to have more support as I have almost none at all now. I do not wish to insult members who have SMA from genetic origin. I am feeling we have much in common and I sincerely need friends. I apologize for misunderstanding. I hope I can find acceptance here.
I have SMA and constantly suffer from bronchial infections due to post nasal drip and would really like to be able to manage it .
This body shaming problem is for everyone i guess, not for people with sma only. But anyway I wanted to ask as a girl struggling with that feeling time to time
Well Personally I don't much like wearing anything that Clings to My Body, because then My Crooked Body really shows. So I tend to buy what I like, but I may buy just a tad bit larger just so it's not… read more
So after the neurologist gave me the SMA diagnosis in Jan, my mom remembered that we were sent to a genetic specialist when I was 4(1984); and SMA wasnt discussed at all.
Just curious if that is a common occurrence, or was SMA just not as well know in 1984?
Wow!